What a difference a day makesWell after my last posting, Lydia seemed to be doing so incredibly well. The whole team of Consultants, Doctors, Surgeons and host of other medical staff said she was doing very very well and there was talk of being released home maybe 2 weeks ahead of schedule. Well, day 7 post-op was her last great day. She was bouncey, lively and cheeky, much like the Lydia of old. The day 8 she had a temprature of 39.7c and everything went pear-shaped. Turns out she has an infection somewhere. So the last three/four days, the medical staff have been testing, scanning , x-raying and testing again to see if they can locate the souce of infection. Turns out, she had a collection of fluid in her body of bile draining from the new liver. ALthough the donor liver was functioning perfectly well, as it was a split liver(not a whole donor liver) the cut surface was still leaking a little. Well bile in the body is just nasty. This made lydia so very unwell. The fluid was compressing her right lung and making very very hard for her to breathe. The bile was causing unbelievable amounts of pain in her little body. Its just horrible watching your little girl writhe in pain knowing there is absolutely nothing you can do to take it away. One feels so bloody helpless its unreal. You stroke her head whisper in her ear but you feel...what the fuck am i doing?...she needs morphine or something. So unwell to the point that she went back to theatre yesterday to have a second drain inserted to remove the bile collection. As i am at home at the moment (about to return to hospital) I hear she is doing better already but god knows? I bet she is tired and sore. I know my wife will be ready to change over and come home. It just goes to prove what a roller coaster ride we're having. One minute filled with joy, the next we're watching our little girl getting worse to the point she's fingthing for breath and wracked with pain. All i can say is, keep praying for her. All your kind words of love and support really mean the world to her and my wife and I. I'll try get some more photos on soon. Perhaps less of her and more of other things. God knows this must be boring for you all.
Love and hugs to each and everyone of you.
Rich
p.s. incidently, does anyone know what you would call a collection of doctors?
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